This World Down Syndrome Day is a time to celebrate people with Down syndrome and join the conversation about their future.
On 21st March, people from all over the world will come together to mark a momentous event to bring awareness and change to the lives of around 47,000 people in the UK. World Down Syndrome Day (WDSD) gives us this opportunity every year and chooses her 21st of the 3rd month to mark Trisomy (the extra copy of her 21st chromosome that people with Down syndrome have).
Until that day, and all year long, the members of the Our Voice group at the Down’s Syndrome Association (DSA) are working together to create positive change. The group, made up of people with Down syndrome who work as part of the organization, meets weekly to discuss important topics and collaborate on projects.
Aimee and Angus are part of the Our Voice group, ready to see people with Down syndrome celebrated and participating. Aimee has two volunteer jobs at an organization focused on saving the planet. Angus works in the developer community and is an actor.
“There is so much encouragement in our voices,” enthuses Angus. “It’s good for other people to bring their own projects and get involved and learn how to talk to you. His one of the topics we discussed was mental health in the NHS.”
As WDSD draws near, Amy tells us what it means to her. For example, everyone involved in DSA. ”
not for us, but with us
Advocating for the rights of people with Down syndrome takes up most of the day, and this year’s theme is to highlight this fight. On March 21st, people with Down syndrome are calling on citizens and organizations around the world to stand up for us, not us. This theme recognizes the need for a human rights-based approach to disability in the light that persons with disabilities must be treated fairly and given the same opportunities as others.
“It’s nice to speak up. We have the right to say no,” explains Amy. “We have the power!”
This theme also emphasizes that every person’s needs, likes and dislikes are unique to that person.
“Every person with Down syndrome is different,” emphasizes Amy. “Some people use wheelchairs, some are deaf, some are blind. Different people have different needs. has a band of , which means you can skip columns.
“I wish everyone in the world knew about Down syndrome. I have trouble seeing small print.
For Angus, the meaning behind this theme focuses on inclusivity and visibility.
“People with Down syndrome should stand out with more confidence,” he explains. “this [theme] It means trying to get people to talk about it. You should ask people with Down syndrome. ”
Angus hopes that more awareness and change will create better opportunities for socializing and making friends, and that people will be given opportunities that meet their individual needs.
The impact of this day will be long-lasting and conversations will start around the world, but we hope that celebrating the occasion and being informed means a better future for people with Down syndrome around the world.
“It’s up to us to create the future. [To] Let’s create our own future,” adds Aimee.
Anyone can mark WDSD by wearing a colorful everyday item, a sock. Underwear has become a global symbol of Down syndrome. The condition is caused by someone’s extra copy of her chromosome 21 in her DNA, and if you look closely, the chromosome looks like a little sock. Each year, Mencap’s Rock Your Socks campaign (www.mencap.org.uk), the UK Learning Disability Charity, to commemorate WDSD.
This year the charity partnered with a British company stand out socks Encourage them to wear their funkiest pair and celebrate people with Down syndrome. Like many people, Ross had trouble finding work, so his older brother, Christian, wanted to create a company where he could become an integral part of the business. The idea came to fruition after Ross wore bright socks to celebrate Down Syndrome Awareness Month in October 2021.
To commemorate WDSD, Ross chose two colorful designs to raise significant funds for Mencap. £3.21 per adult sock and 50p per child sock were donated. Regarding the importance of this day, the two brothers said: People with Down syndrome have many different abilities, but like everyone else, they have their own personalities, likes and dislikes, and who they are.
“We want to raise awareness and spread the word disability inclusion so that others can be accepted and accept themselves for who they are. .”
http://enablemagazine.co.uk/world-down-syndrome-day-with-us-not-for-us/?utm_source=rss&utm_medium=rss&utm_campaign=world-down-syndrome-day-with-us-not-for-us World Down Syndrome Day: With Us, Not For Us