Tuesday, April 2, 2019 (USA) heart Association News)-Rickey and Greg Myers were excited to hear if their first child was a boy or a girl. They were hosting Thanksgiving and wanted to reveal their gender at that time.
But when the doctor spoke, the only important word was that “your baby forms only half of the heart.”
Tests showed that their boy had hypoplasia Left heart syndrome. With HLHS, the left side of the heart does not develop properly in the womb, making it impossible to develop the left side of the heart in the womb. Left ventricle -Responsible for pumping freshly oxygenated blood to the rest of the body-to function properly. Without immediate intervention Congenital heart disease It is usually fatal within the first few days or weeks of life.
When Rickey and Greg grabbed their emotions, they became practical. They were always very determined in everything from playing tennis to their career.They will bring the same attitude Parenting..
They hosted Thanksgiving as planned and gave them plenty of time to discuss bittersweet news with their families. On the same day, they decided to name their son Skyler Christian. They liked Sky as their nickname and chose Christians to embed the couple’s faith in his name.
“We knew more than ever that we needed God in our lives,” Ricki said.
The couple continued as usual, except for regular medical examinations at the Levine Children’s Hospital in Charlotte, where they lived at the time.
“We bought baby clothes, played nursery, and played tennis,” Ricki said. “It was okay”
She continued to notice the stores that sell her products with the word “believe.” So she bought them all for Skyler’s nursery. She started closing the blog that wrote about their experience with “Always Believe.”
Children born with HLHS usually undergo surgery three times in the first days, months, and years after birth. The goal is to stabilize and reconstruct the heart so that only one ventricle can pump blood.
As soon as Skyler was born in April 2008, he hurried Newborn baby I connected to the intensive care unit and the machine to help keep him alive until the first surgery.
On the third day, the doctor said he wasn’t strong enough for the surgery. Myers called on their priests to do an urgent baptism.
On the fourth day, he improved slightly and the surgeon gave a green light.
After the surgery, Skyler spent the first month in the hospital. However, at the age of three months, his condition worsened.
Rickey and Greg were told if Skyler didn’t have Heart transplant, He will live 7 to 10 days.
Six days after Ricky called it “the most difficult week of all time,” surgeon Dr. Larry Watts stepped into Skyler’s room and said, “Mom and dad will have a long night. Skyler holds his heart. I’m out. “
Greg gave Watt a bear hug, jumped off the ground and wrapped his legs around the doctor.
The next morning, when Skyler came out of the operating room, “he looked like a whole new kid, that is, like a whole new kid,” Ricki said. “He was a blue baby all the time, and now everything was pink. Even his nail bed.”
Skyler went home the next week.
A few months later, Skyler was hospitalized with a serious illness that doctors could not diagnose.One of his problems was the drooping face caused by Bell’s palsy..
Rikki sought out Dr. Yuliya Domnina, a specialist in the Pediatric Cardiac Intensive Care Unit who was involved in his care. Ricki mentioned the hanging face. Doctors quickly recognized the cause of Skyler’s problem, a condition associated with organ transplantation. Skyler was treated by reducing the drugs used to combat organ rejection and launching other drugs.
Domnina proposed to transfer Skyler’s care to the Pittsburgh Children’s Hospital, where she happened to be. Pittsburgh is highly regarded in its pediatric transplant program.
Skylar has been away for almost a decade without any serious health fears. His parents take him to an annual health checkup in Pittsburgh, where they spend time with Domnina and her family.
“I remember Sky being such a little baby,” said Domnina. “Now he is a very big boy and we are celebrating all his milestones. As a cardiac intensivist, it is a special opportunity for me to see him turn into a healthy boy. I definitely value a unique glimpse into what our kids and families go with. “
Skyler will be 11 years old on April 6th. He is a 4th grader and plays tennis, golf and touch football (cannot participate in contact sports). He also loves everything about airplanes.
He has some Learning disabilities, It makes the school challenging, but he is a superstar fundraiser at his school.
He claimed school district records last year when he raised $ 2,800 in the American Heart Association’s Kids Heart Challenge (fourth) at an elementary school in Sanford, Florida, where his family currently lives.
For years, Rikki has volunteered for related causes Heart disease.. She no longer blogs about family trips, but sends Christmas cards every year.
The couple kept their faith when the baby was nearing death-and the transplant saved him
Source link The couple kept their faith when the baby was nearing death-and the transplant saved him