Education

Understanding Tourette: Through the Eyes of Holly Brown

Tourette’s was first recognized as a neurological condition in 1886. It is unbelievable that it is not yet recognized as a disability in New Zealand. Tourette patients are often bullied, described as “misbehaving”, as a “mental health problem” and subject to ridicule. Holly Brown desperately wants the public to understand this, accept it, and most importantly, respond with kindness.

Holly Brown is an 18-year-old, talented, talkative woman who lives on the coast. He also has an abrupt start to Asperger and Tourette.

Holly first experienced tics (involuntary movements or sounds that occur repeatedly) at the age of 14, after which she suffered from a disorder due to prolonged bullying at school.

Kate Brown, Holly’s mother, said that although Holly was always different, they did not know at the time that she had Asperger’s disease.

She has been able to mask autism incredibly well all her life.

In high school, when Holly finally reached her victim, her turret exploded on stage.

All of his autism management techniques and coping strategies stopped working and he started having panic attacks and extreme anxiety.

In two weeks he had moved from there to a place he had never stung before, suffering from constant pain of all kinds.

Katie says they later learned that this explosive appearance of turrets is not uncommon in adults who have never experienced ticks before.

“It was incredibly outrageous and depressing at the time,” Katie said.

“We soon learned that ticks were tiring, they can be crushed, but doing so is often very painful and generally only causes the ticks to explode later.”

The doctors who saw them were confused and none of them had any Tourette experience.

Hall has been prescribed strong medications that suppress the outward expression of tics, but no Need To Tika.

Unfortunately, the medication often left Hall calming, tired, and disordered.

He no longer takes medicine for his tics because he could not find anything effective.

“Having a turret is awkward,” Holly explains. “You do not want unintentional sounds or actions.”

Holly goes on to say that the fact that disability is not considered in New Zealand suggests that she is doing so for some reason purposefully, which is understandable that she is quite excited about.

Public education

Tourette and Tick disorders are not well understood. There is a lack of research in this area and there is no clear way of diagnosis for many children in New Zealand.

6 out of 1000 people are born with a turret. Although only a few of these people will ever be diagnosed.

It is a neurological pediatric disorder and is not a mental health disorder.

Very little is known about the cause of turmeric and there is no cure.

Tourette is considered a comorbid disorder, which means that patients are more likely to have other associated conditions or disorders at the same time. Common comorbidities include anxiety, depression, OCD, and ADD / ADHD.

Because of Tourette’s exposure, as well as comorbidities, school is often a huge challenge, and children are misnamed as “bad behavior.”

“You have no control over what your body does and you have no idea when it will happen or how bad it will be.”

Tourette’s are often associated with “swearing” and, as such, have become the subject of jokes by some people.

In fact, 10% of people diagnosed with Tourette’s suffer from coprolalia – the involuntary omission of socially inappropriate words, gestures or remarks.

People who experience these types of tics may feel humiliated, embarrassed, and sometimes may feel guilty about being unintentionally insulted by someone.

“Because the turret is not well understood,” says Hall. “You are publicly afraid of not believing that they are ticks – people think so. You It does. “

“I’ve seen it funny on social media, but as a Tourette patient, I can tell you it is not.”

“Just going out is brave,” says Katie.

“As a restrained and very polite person, Holly gets nervous when she experiences these types of tics in public.”

Katie explains that in the early days of Hall’s diagnosis, there was very little information and support for Tourette.

The only source of support he received was the Facebook page of the parent of the Tourette Association.

Surprisingly, to this day, the Tourette Association, started in 2013 by a mother who struggled with a lack of research, support, and understanding around her child’s diagnosis, still remains the only source of education and support for affected people. Disorder.

Holly hopes that one day people with a turret can get the help and support they need as New Zealand recognizes her disability.

What does it mean to recognize a disability?

Recognizing a disability is an important step for people affected by the Tourette.

This can mean funding, education, research, financial support, as well as support for medicines, health and well-being.

This can go a long way for the victims to lead a more normal life.

“I want it to be considered a disability because it is,” says Holly. “If the brain forces you to do something involuntarily and it prevents you from doing things like driving and working, then you are disabled.”

“The level of the tour really exists and it is my more intense ending. But when it comes to other disabilities such as blindness and epilepsy, people also experience them to varying degrees, but it is still recognized as a disability so that sufferers can receive support and understanding. ”

Holly goes on to say that Tourette is recognized as disabled in many other countries around the world. He finds it strange that New Zealand does not see him as one.

Research and education are also an integral part of the change that needs to take place in a society where, instead of empathy for disorder, there can often be ridicule.

Many people with this disorder and its accompanying diseases are excited to hear people comment, such as, “I’m depressed” when they have a bad day.

Or “I’m very OCD” because maybe they like a tidy chair. People were also seen shouting “Tourette’s” at work when they swear.

Maybe as a society we need to think about the meaning of our language and the words we use to describe our daily lives.

When asked what he wanted people to know most about Tourette, Holly said:

It’s not cute or funny. For me it is every day and always. Ticks are actually painful – I have repeatedly injured my head. It aggravates social anxiety. “

“I also want people to know that for those who start a tour suddenly, it is important to know that it starts violently and often, but usually ends over time.”

He also hopes that people will respond with patience and kindness.

It is inspiring how brave Holly and many others who experience Tourette pain must be to continue their daily lives.

Stephanie Weller, the mother of Tourette’s daughter, sums it up nicely when she says:

“We need more socialization of the situation, but also because the society should be more open and kind.”

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Understanding Tourette: Through the Eyes of Holly Brown

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