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Right to support – enable magazine

The coronavirus pandemic has left unpaid caregivers underestimated as overworked as they continue to take on additional responsibilities for caring for their loved ones.

During the pandemic, 4 out of 5 caregivers provided additional care due to reduced access to support, and 72% of caregivers did not take a break. Many say that their compassionate role during a pandemic has reduced their physical health.

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The pandemic was a difficult and transformative time for unpaid caregivers and the people they care for. ” Carers UK.. Due to pandemic pressure, many caregivers are exhausted and worried about how they can continue to care. ”

One of these caretakers is Julia, who takes care of her husband Lawrence. In 2018, Lawrence was diagnosed with progressive supranuclear palsy (PSP). It is an incurable, progressive brain disorder that affects executive function, language, swallowing, vision, and movement.

“My husband needs constant help to keep him physically safe, healthy, and emotionally safe,” explains Julia.

“I used to be a sandwich caregiver, which means I had cystic fibrosis, a respiratory illness, and I was caring for my son and parents, who are now adults.

“Even before the pandemic, my husband and I lived in our own little bubbles – the COVID-19 limit was just an extension of our lives for the PSP.”

While life is open to many of the population, Lawrence’s condition is deteriorating.

“It’s getting harder and harder to take care of him myself,” admits Julia. “I haven’t been away from care for more than two years, so I realize that our care situation is unsustainable. It really affects my mental health.”

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The need for greater support for unpaid caregivers is not a new concept. It’s been campaigned by charities like Carers UK since its inception, but in situations like Julia it’s now essential to survival.

“For years, caregivers have spent enormous amounts of money on their health, finances, and ability to continue working to support a chronically underfunded care system,” Emily emphasizes.

“Without additional breaks, funds and investments to return to support services, the stress and challenges of this period can lead caregivers to reach a turning point.”

Caregivers are desperately in need of help to regain quality of life and continue these roles.

“We welcome the government’s commitment to consider the information, advice and rest that caregivers need, but this entails a significant investment in caregiver breaks that are urgently needed. We need to, “continues Emily.

“If you choose to take care of your loved one, you often incur financial penalties.”

Julia, with better support, becomes more aware of the role caregivers play in providing quality health and social care in the UK, and caregiver allowances are paid at the same rate as other benefits. I hope that.

“I would like to make sure that the good practice guidelines that already exist to support unpaid caregivers are properly implemented. In particular, first identify the caregiver and all GP practices are for the caregiver. Being kind, the caregiver’s physical and mental health is protected by an annual caregiver health check, caregivers have regular and timely rest, and are often taken care of in the absence of their loved ones. You can rest assured that you know that, “Julia emphasizes.

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The significant costs of unpaid caregiver health, finances, and work over the last decade must be recognized as the first step towards better support. Compassion often affects the health of those who play a role, causes stress and fatigue, and requires additional support on its own. Without health, unpaid caregivers cannot continue to provide adequate support to others.

Julia and Lawrence

“Unpaid caregivers are tired, exhausted and need more help. We provide billions of pounds of unpaid care annually. We support the NHS and the social care sector. However, our own needs are regularly ignored, “acknowledges Julia. “Taking care too often has serious health consequences for unpaid caregivers who suffer from stress and malaise, and puts a serious burden on their relationships with the caregivers.

“Careers need breathing and support for their own well-being to prevent us from burning out and to recover after an incredibly tough period during a pandemic.”

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Events like Caregiver Rights Day, Held annually on November 25th, it ensures that caregivers have the information they need to see what support is available.

“Care can be difficult without the right information and support. Caregivers need to know their rights wherever they are on their caregiving journey, whether at work, in the medical setting, interacting with professionals or at home. “Emily emphasizes. “We want to provide information and support so that caregivers can confidently ask for the support they need.

Emily

“We want caregivers to know how to challenge things when their rights are being ignored. We also bring together organizations across the UK to caregivers in the local community. Wants to know their rights and find ways to get qualified support and support. “

These days give Julia hope and allow caregivers to share their stories, talk about the reality of their lives, and listen.

“Sufficient caregivers do not know about their rights and legal qualifications. We want other caregivers to know what support is available,” explains Julia.

She will also encourage other caregivers to seek help from their family doctor, social services, friends and family.

“Despite the pressure of unpaid care every day, take a moment every day to keep up with your friends and find the joy of every day. Listen to the birds, observe the changing seasons, Really enjoy that cup of coffee. Let’s go for a walk or run, “Julia recommends. “It’s not a luxury-it’s an important part of taking care of your mental and physical well-being to keep you in your unpaid and compassionate role.”

Learn more about Caregiver Rights Day Access advice at www.carersuk.orgPlease send an email to advice @ carersuk.org or call the CarersUK helpline at 0808 8087777.

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Right to support – enable magazine

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