Education

New hopes for understanding and managing epilepsy

A new book has recently been published to provide practical help and hope to those whose epilepsy status is often misunderstood.

Epilepsy affects at least 50,000 New Zealanders. About 30% of these have no seizure control and are called drug-resistant epilepsy.

This book is intended for a wide range of readers, including direct people with epilepsy, family members, caregivers, housemates, colleagues, and employers who want to know more about the disease and its effects and management. It is written in.

A special feature of this book is that it contains 12 direct explanations of people suffering from epilepsy about their experiences, challenges, and outcomes. Their top priority is to hear their voice.

Epilepsy, a regional epilepsy provider in the Waikato area, the Waikato Charitable Trust (EWCT) published this book in September 2021. Understanding and Managing Epilepsy-Introduction Guide..

Written by EWCT Epilepsy Advisor Maria Lowe and EWCT TrustBoard Chair David Lowe, this book is the first general epilepsy book published in New Zealand for over 30 years.

On September 30, 2021, 100 copies of this book were donated to the Department of Neurology at Waikato Hospital.

Maria Lough (left) and David Lough deliver 100 free copies to Waikato Hospital

“These books are very useful for hospital clients suffering from epilepsy, especially newly diagnosed hospital clients, and families who want to know more about their medical condition and what support is available in the community. “Maria said.

We’ve gathered a lot of information and put it between the covers so that it’s all at your fingertips, rather than being scattered and difficult to access and understand. “

EWCT also provides free copies to all libraries in the Waikato area.

This book contains many different types of seizures, treatment options (including a ketogenic diet, proven effective treatment for children and adults with drug-resistant epilepsy), and potentially lifelong effects of epilepsy. It covers complex properties at the entry level. And how to live safely in that state.

Hong, the patron saint of EWCT. Tim Machinedeau wrote in the preface of the book: “Such publications are of great value to all members of the community, especially those who have no experience with epilepsy or who do not know how many types of epilepsy there are.

In addition, the book shows that epilepsy can have a lasting impact on the lives of people with epilepsy and their families. “

EWCT is a small regional epilepsy provider based in Hamilton and serving primarily the Waikato area (of Waikato DHB). The Trust also supports people outside of Waikato, such as Tauranga, Auckland, Wellington, and Zoom. EWCT is non-governmental funding and is entirely dependent on donors and donations.

Previously, EWCT published two children’s books, “Ben’s Buddies” and “Ariana and Jack.” Hundreds of copies of these picture books, in both English and Maori, are provided free of charge to clients, schools and others interested in epilepsy and its effects.

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For more information:

EWCT website

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New hopes for understanding and managing epilepsy

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